There is now a Registry for Eosinophilic Gastrointestinal Disorders (REGID) at http://regid.org/
Patients with and caregivers of children with EGIDs can soon register; however, the login and registration is still under construction.
From the Registry website:
The Registry for Eosinophilic GastroIntestinal Disorders (REGID) is a collaboration of medical centers, professionals, families, and individuals whose mission is to improve the knowledge, research, and outcomes for people living with eosinophilic gastrointestinal disorders. REGID is not only a national registry of people affected by eosinophilic gastrointestinal disorders but also a forum to enhance the connection of people to resources and research.
We’ll try to post again when the Registry is up and running.