Presentation by Dr. Alex Straumann: June 22nd May 12, 2011
Posted by weac in Uncategorized.add a comment
The Washington DC Area Eosinophilic Connection (WAEC) has been invited to attend a presentation by Dr. Alex Straumann, a leading researcher in the field of Eosinophilic Disorders. This is a wonderful opportunity to hear one of the top researchers in the field. If you are interested in attending, please see the event & RSVP details below. Please note this presentation focuses solely on Eosinophilic Disorders.
WHO: Dr. Alex Straumann, internationally renowned researcher
More information about Dr. Straumann can be found at the following link: http://www.ibdnet.ch/dt/about/members/straumann.html
WHEN: Wednesday, June 22, 2011 from 8:30-10:00am. A light breakfast will be offered.
WHERE: City of Fairfax Regional Library, located at 10360 North Street, Fairfax, VA 22030
O & O Alpan, LLC is sponsoring this event. To RSVP, please email: NationalEoESummit@…
Any questions may be directed to NationalEoESummit@…
National Eosinophil Awareness Week May 12, 2011
Posted by weac in Uncategorized.add a comment
National Eosinophil Awareness Week (NEAW) is next week, May 15th through 21st!
What can YOU do to help spread awareness about Eosinophilic Disorders?
Show your support for the NEAW theme of EDUCATE
Educate
Donate
Unite
Change
Awareness
Thank
Engage
Promote NEAW as a community by placing the awareness logo on websites and social media. Encourage others to also become engaged.
NIH Clinical Center looking for adults ages 18-65 with an EGID March 22, 2011
Posted by weac in Eosinophilia.add a comment
Doctors at the National Institute of Allergy and Infectious Diseases are conducting a study to improve understanding of how immune system responds to food allergens and how immune cells contribute to disease in individuals with food allergies and eosinophil-associated gastrointestinal disorders (EGIDs). The study is open to individuals 18 to 65 years old with EGID. There’s no cost for study-related procedures and compensation may be provided.
The NIH Clinical Research Center is located in Bethesda Maryland, and is the government’s premier research hospital. Clinical research is conducted to find new and improved ways to prevent, diagnose and treat disease. Approximately 1,000 studies are conducted at the Clinical Center on common and rare diseases. Every research patient and healthy volunteer admitted to the Clinical Center participates in a research study.
Your help will make a difference in our ability to improve the lives of people with this disease, as well as lives of future generations.
To participate, call 1-800-411-1222 (TTY#:1-866-411-1010). Se habla español. For more information on the study, visit clinicaltrials.gov and refer to study 10-I-0196. NIH is part of the Department of Health and Human Services.
Healthcare cannot advance without clinical research, and your assistance is very much needed if we are to inform the public about opportunities to participate in our studies.
World Rare Disease Day February 1, 2011
Posted by Rosemary Moriarty in Eosinophilia.add a comment
Each year, Word Rare Disease Day will be observed and this year it is February 28th, 2011. The goal of NORD’s Rare Disease Day is to draw attention to rare diseases as an important public health issue that cannot be ignored. For more information, please visit http://rarediseaseday.us/
NORD Medical Foods Conference February 1, 2011
Posted by Rosemary Moriarty in Eosinophilia.1 comment so far
On February 10th, 2011 NORD (National Organization for Rare Disorders) will be hosting a conference in Washington, DC to focus attention on the struggles of everyday families trying to provide medical food and specialized formulas to children and adults with varying diseases. Because these foods are not considered medicines, insurers don’t always reimburse for them. NORD plans to bring together the experts to focus in on this issue. For more information please visit NORD’s site: www.rarediseases.org
http://www.bigtent.com/groups/waec 
